Tuesday, January 27, 2009

Hit The Road Cold!

Brrrr. It's cold outside and my MS is not happy. Right now, the weather is in the 20's and I am feeling all of the aches in my hands and knees that come with the cold. We have had countless snow storms the last couple of weeks and I hear that tomorrow we should be getting another 3-5' inches.

That Ray Charles song, Hit the Road Jack, comes to mind, but I keep substituting the words with, Hit the road cold and don't you come back no more, no more....

With spring 2 months away, it seems that I will have to just deal with the cold, snow, icy roads, and aches from my MS. At least I don't have to shovel. That's my husband's job. ;)

Well, I think I have done enough ranting for today. Now back to work I go. But please Mother Nature, if you are reading, cut us some slack and give us a break from the cold at least for just one day.

My hands and knees could use a break.

Friday, January 23, 2009

Get Your Walk On!

Well, I officially registered for my first walk to help find the cure for MS. I am very excited! The walk will be on Sunday, April 19th at a park not far from my job. My husband was very proud of me and said he would be honored to walk with me. I hope to raise a lot of funds.

One of my coworkers has really inspired me. She has type 1 diabetes and organizes the JDRF Walk to Cure Diabetes every year. She has raised a lot of money towards research to find a cure and I am looking to do the same for MS!

I've got my sneakers ready and through rain or shine I will walk. A cure is coming soon. I can feel it!

Thursday, January 8, 2009

The New Year

Well, it has been a long time since I have blogged about my MS. Life can come at you fast and suddenly you find that you have no time for the little things.

Today, I want to write about my MS anniversary, which was on January 4. I marked this day in my calendar hoping that I would remember. Well January 4th came and it wasn't until I went to bed that I had remembered that it was my MS anniversary. I lied there in bed thinking about the last 2 years that I had spent with this disease. It was quiet and I was able to reflect on my thoughts.

MS was something I never really thought about until I had a symptom that made sure I was reminded that I had this chronic disease. There was the monthly Tysabri injections that also made it quite clear, but I guess I tried to live my life as if there was nothing wrong with me, which I never really noticed until that night.

Physically, I feel fine, not many problems, thank God, but I realized that pushing this disease away was not going to make it go away. So for the firs time in 2 years, I really felt like I want to be more proactive with my MS life. It's apart of me and I shouldn't shun it away until it's in my face causing me pain, fatigue, and nervous twitches.

In 2009, I want to try and help find a cure for this disease. So, I am going to attend my first MS walk this coming April. I am actually looking forward to it. I will finally be around others who understand what it's like to live with this disease and maybe meet some new friends.

In this new year, I will be trying to have a baby as well. I have stopped taking my Tysabri medication since November and look forward to starting a family.

This year is going to be the start of many new changes in my life. And I welcome the new with open arms.